They are selected with due regard to public health relevance, evidence on efficacy and safety, and comparative cost-effectiveness. WHO defines essential drugs as those that satisfy the priority health care needs of the population.

Placing chelation drugs on the Nepalese list of Essential Drugs, which means that these drugs will be offered free of charge for patients. Chelation agents for haemoglobinopathies are already in the WHO Model List of Essential Medicines.

The provision of free blood to patients, to balance the current out-of-pocket expenses.

The provision of free space in the state hospital for the treatment of children and adults.

TIF is happy to announce that there was positive reaction by the local stakeholders in Nepal, who expressed willingness to proceed with concrete actions to improve the care of thalassaemia for children and adult thalassaemia patients. Durga Pathak, President, Nepal Thalassaemia Society

Wendy Pinker – Founding member, Nepal Thalassaemia Society Romaine Geeta Maharaj, UKTS – Operations Manager, TIF Board Member Gabriel Theophanous, UKTS President, TIF Board Member

Dr Sara Trompeter, Consultant Haematologist and Paediatric Haematologist, Joint Red Cell Unit, University College London NHS Foundation Trust, Haematology Department, Cancer Services.

Dr Michael Angastiniotis, Medical Advisor, Thalassaemia International Federation.

Debriefing meeting of Delegation – Discussion of Report – Next Steps.

Meeting with Ministry of Health & Population to discuss epidemiology, treatment facilitation, awareness, prevention.

Interaction program with doctors (relating with thalassaemia directly or indirectly).

Capacity Building Workshop for Patients/Parents and information on basic treatment at the Amrit Bhog Party Palace.

Meeting with Treating Physcians & Hospital Administration.

Fact finding meeting with Nepal Thalassaemia Society.

The Thalassaemia International Federation and the UK Thalassaemia Society have jointly organised a delegation visit in Nepal, from 4 to 6 August 2018.

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